Sunday, July 18, 2010

A Post About 4 of 6

We are at a point in our journey, where we need to make a decision. Not a mind blowing, life altering, never come back from choice, but something that will impact our lives, none the less.
Let me start from the point where I knew something had to be decided.
We are a traveling family. We enjoy a good day trip, hike, picinic, lake, ect. Just being out side. When we had 4 of 6, it was still do able. She was carry able. We had 5 of 6, it was still do able, we had a double stroller, and 4 of 6 was little. Now 2 kids later, we can't. 6 of 6 is in the back pack, 5 of 6, loves to hike, run, swim... all the stuff we like. 4 of 6. No. She likes to sit and dig in the dirt, collect rocks and be carried. Which, the 1st to activities are fine, once we get to our destination, but getting there is a disatster. She doesn't like to hike, and she is too big and heavy to carry to most of our destinations. Camping is hard, because she wanders, and doesn't like to hike once we get there. SO I inevitably get stuck back at camp with the 3 girls.
As we were climbing, slowly, up Little Cottonwood Canyon the other day, I started thinking about options.
1 We could leave her behind, with a neighbor, Grandma, cousins.
pro- we could blaze trails, run, make good time.
con- I can't leave her behind. I have gone places with out all my kids before, and I have this constant nagging feeling, I am missing something. Everything is out of balance. I get anxious. It's also not fair, to her. She is part of the family. It's not fair to who ever has to watch her. it's not their job to take our kids because we don't want to. I Like having her with us. Our whole family is just that, it makes us whole.
2. We could haul her with us.
pro- she gets to be with us, experience things that every little kid needs.
con- It Is Hard. It really is really hard. I get frustrated with her pace, or lack there of. The kids want to be running and exploring, and she wants to follow. But, she can't some of the places we go are dangerous for someone like her. We go to ghost towns, hiking on mountains, and swimming in creeks. Or she wants to be carried. She weighs 36 pounds, which for right now, isn't too bad, but she's tall and floppy, so on your shoulders is awkward, and in your arms is hard on the back.
3. Scale back.
pro- maybe she would enjoy it more if we weren't constantly pushing her to go, come on, move faster, get up, no I am not carrying you.
con- It's boring. The kids have all been there done that.
4. stay home.
pro- we can lock our selves in, like we do everyday, and I can let my guard down. I can't relax when we are out because you have to know where she is and what she is doing at all times.
con- know one benefits from that.

I don't know what to do. I have noticed on friends blogs that have kids with DS, most of the times the kids are not there. Is that the best option? Would I just get used to it? DO you pick and choose what trips they go on? Even taking them on trips where there is the option to stay with friends or family, we have started picking to stay in hotels, there's just too many of us, and if you are not used to 4 of 6, she can be frustrating. Which is why I can't let my guard down, also. I have to know exactly what she is doing, so we don't irritate others. SO, traveling becomes expensive.
What is your families thoughts on this, and why?
I'm wondering also, if a good pair of hiking shoes would make hiking easier? Is she just so floppy in her joints, it's painful for her?
Thoughts please.

3 comments:

heather said...

This is such a hard thing. And unfortunately I don't have the answer. We try to include Morgan as much as possible. I feel guilty if she is left out but yesterday at Griffin's party I didn't make her get out of the water from swimming to participate in the pinata game and later she came over when she noticed we were eating cake and ice cream. I felt bad that I didn't get her out to sing happy birthday (which she LOVES!) but she was hitting all of the party goers and it was just easier to let her stay in the pool.

It doesn't get any easier. Morgan is still a runner, wanderer, food thrower, yeller, etc. but now she is almost 60 lbs and sooooo hard to pick up and remove from a negative situation.

I was talking to a fellow Ds mom yesterday and she said her daughter was just diagnosed with PDD-NOS and that Morgan's behavior sounded a lot like her daughters. I'm going to see if I can see a behavioral specialist for some ideas because I am really struggling right now with what to do and how I can best help Morgan get her behaviors under control.

We need to chat. :)

Unknown said...

I am not an expert I have no experience in this. But I like the pick and choose what you take her on...Because this is who you are who your family is. She needs to be a part of that...But the rest of your family could use a good hike once in a while also to be fair to them. So I say take her on some that are a little easier and slow the pace a little with her, and on others leave her with a fun day with a neighbor or family member and take the others on something you can all enjoy at your usual pace.

Kristin said...

I'm not there yet - good luck.